Patient priorities in herpes simplex keratitis.

Liu, Xiaoxuan and Kolli, Sai and McDonnell, Peter and Patel, Amit K and Quinlan, Michael and Skym, Kevin and Denniston, Alastair K and Shah, Peter and Williams, Geraint P (2019) Patient priorities in herpes simplex keratitis. BMJ open ophthalmology, 4 (1). e000177. ISSN 2397-3269. This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs

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Official URL: https://bmjophth.bmj.com/content/4/1/e000177

Abstract

Objective

Herpes simplex keratitis (HSK) is a sight-threatening disease and a leading cause of infectious corneal blindness. Involving patients in setting the research agenda maximises patient benefit and minimises research waste. With no published patient involvement exercises, patients' priorities in HSK are unclear. The objective of this study is to explore patients' priorities for research in HSK.

Methods

A literature review of publications in the year preceding recruitment of patients identified nine domains of research interest. A questionnaire was sent to participants asking them to rank these in order of priority. The ranking results were given a weighted-average score, and a thematic analysis was undertaken for the narrative data.

Results

Thirty-seven patients participated in the survey. Top priorities for patients were risk factors for recurrence of infection, diagnostic tests and treatment failure. The narrative data revealed three key clinical needs: difficulties in long-term symptom control, the need for rapid access care in acute infection and the desire for more accessible information.

Conclusion

This study highlighted three major issues in our current approach to HSK. First, there may be a misalignment between research efforts and patient priorities. Second, high-quality patient information is not widely available. This may hamper patients' abilities to make informed decisions and contribute towards research. Third, clinical service priorities are of equal importance to patients as research. Researchers and clinicians are encouraged to address both needs in parallel.

Item Type: Article
Additional Information: This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs
Subjects: WW Eyes. Ophthalmology
Divisions: Ambulatory Care > Ophthalmology
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Depositing User: Mr Philip O'Reilly
Date Deposited: 14 Jun 2019 13:11
Last Modified: 14 Jun 2019 13:11
URI: http://www.repository.heartofengland.nhs.uk/id/eprint/2153

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