Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study.

Jones, Laura and Danks, Emma and Clarke, Joanne and Alidu, Lailah and Costello, Benjamin and Jolly, Kate and Byrne, Alison and Fassam-Wright, Meg and Latthe, Pallavi and Taylor, Julie (2019) Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study. BMJ open, 9 (10). e034140. ISSN 2044-6055. This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.comz795c8c by using their UHB Athens login IDs

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Official URL: https://bmjopen.bmj.com/content/9/10/e034140.full

Abstract

INTRODUCTION

Female genital mutilation (FGM) is a significant global health concern and is likely to become an increasingly important healthcare challenge in destination countries such as the UK owing to rising levels of migration from FGM-affected countries. Currently, there is no consensus on the optimal timing of deinfibulation (opening) surgery for women who have experienced type 3 FGM and care provision remains suboptimal in the UK. This qualitative study aims to explore the views of survivors, male partners and healthcare professionals (HCPs) on the timing of deinfibulation and delivery of NHS FGM services.

METHODS AND ANALYSIS

A qualitative study, informed by the Sound of Silence conceptual framework, will be undertaken via two work packages (WPs). WP1 will explore views on timing preferences for deinfibulation and NHS FGM services through interviews and discussion groups with FGM survivors (n~50), male partners (n~10) and HCPs (n~50). WP2 will use established techniques via two workshops (community (n~20-25 participants) and national stakeholder (n~30-35 participants)) to synthesise qualitative research findings and inform best practice and policy recommendations around the timing of deinfibulation and NHS FGM care provision. Supported by trained interpreters, data collection will be audio recorded and transcribed. Data will be analysed using the framework method to facilitate a systematic mapping and exploration of qualitative data from multiple sources.

ETHICS AND DISSEMINATION

The study has received ethical approval from the North West Greater Manchester East Research Ethics Committee (18/NW/0498). The outputs for this study will be recommendations for best practice and policy around FGM care provision that reflects the views and preferences of key stakeholders. The findings will be disseminated via conference presentations, peer-reviewed publications, patient groups, third sector organisations and social media.

TRIAL REGISTRATION NUMBER

ISRCTN 14710507.

Item Type: Article
Additional Information: This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.comz795c8c by using their UHB Athens login IDs
Subjects: HQ Sex. Relationships. Marriage. The family
WP Gynaecology. Women’s health
Divisions: Womens and Childrens > Gynaecology
Related URLs:
Depositing User: Jamie Edgar
Date Deposited: 25 Oct 2019 14:16
Last Modified: 12 Dec 2019 13:14
URI: http://www.repository.uhblibrary.co.uk/id/eprint/2521

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