Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives.

Braithwaite, Tasanee and Wiegerinck, Nils and Petzold, Axel and Denniston, Alastair (2020) Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives. Ophthalmology and therapy. ISSN 2193-8245. This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs

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Official URL: https://link.springer.com/article/10.1007/s40123-0...

Abstract

This article, co-authored by a patient affected by bilateral, recurrent, atypical optic neuritis, and clinicians, discusses the mental burden of living with uncertainty and the possibility of further sight loss, along with the side effects of treatment. The patient shares some of the challenges, coping strategies, and the value they found in creating and participating in a patient support group. The physicians consider whether current clinical measures adequately capture the outcomes that matter to patients and discuss the role for patient-reported outcome measures (PROMs). We identify technological advances that are lowering traditional barriers to the use of PROMs in research and routine clinical care and look towards new PROM instruments enhancing shared patient-physician care in the future.

Item Type: Article
Additional Information: This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs
Subjects: WW Eyes. Ophthalmology
Divisions: Ambulatory Care > Ophthalmology
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Depositing User: Mrs Yolande Brookes
Date Deposited: 03 Apr 2020 11:14
Last Modified: 03 Apr 2020 11:14
URI: http://www.repository.uhblibrary.co.uk/id/eprint/2958

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