Development and usability testing of an electronic patient-reported outcome measure (ePROM) system for patients with advanced chronic kidney disease.

Aiyegbusi, Olalekan Lee, Kyte, Derek, Cockwell, Paul, Marshall, Tom, Dutton, Mary, Walmsley-Allen, Natalie, Auti, Ram and Calvert, Melanie (2018) Development and usability testing of an electronic patient-reported outcome measure (ePROM) system for patients with advanced chronic kidney disease. Computers in biology and medicine, 101. pp. 120-127. ISSN 1879-0534. This article is available to all UHB staff and students via ASK Discovery Tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs.

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Abstract

BACKGROUND

Chronic kidney disease (CKD) is a long-term medical condition associated with symptoms which may negatively impact on patients' health-related quality of life (HRQOL). Patient-reported outcome (PRO) measures or questionnaires may be used to capture symptoms/HRQOL experienced by patients with advanced CKD.

METHOD

Two PRO questionnaires were electronically adapted and incorporated in an electronic system developed at University Hospitals Birmingham NHS Foundation Trust (UHB), Birmingham. Usability testing was conducted with patients with advanced CKD. Qualitative methodology was used to elicit participants' views.

RESULTS

Participants had a mean age of 64.3 years (range: 36-87 years). All owned electronic devices and had access to the internet. The mean time required to complete the two electronic questionnaires was 15.9 min (range = 8-34 min). Patients who had difficulties with the system were those who had the least experience of using the internet and electronic devices. The average usability and satisfaction score was 4.6 (5-point scale).

CONCLUSIONS

Our study suggests that individuals with advanced CKD may find the Renal ePROM system acceptable and easy to use. The use of the Renal ePROM may complement clinician-reported outcomes and assist with the management of patients with advanced CKD.

Item Type: Article
Additional Information: This article is available to all UHB staff and students via ASK Discovery Tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs.
Subjects: WJ Urogenital system. Urology
Divisions: Emergency Services > Renal
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Depositing User: Mrs Semanti Chakraborty
Date Deposited: 02 Oct 2019 15:42
Last Modified: 18 Feb 2021 12:24
URI: http://www.repository.uhblibrary.co.uk/id/eprint/2440

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