Facilitating the adherence journey of children, adolescents, and adults on long-term growth hormone therapy.

Tollerfield, Sally, Criseno, Sherwin, Fallon, Miriam, Jennings, Carly, Jones, Julie, Marland, Anne, Martin, Lee, Ward, Stephanie and Whitehead, Amanda (2020) Facilitating the adherence journey of children, adolescents, and adults on long-term growth hormone therapy. British journal of nursing (Mark Allen Publishing), 29 (19). pp. 1118-1123. ISSN 0966-0461. This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs

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Abstract

Growth hormone deficiency in children and adolescents is treated with recombinant growth hormone injections, with the aim of helping patients reach a final height that falls within their genetically predicted adult height. While this treatment is very successful, overcoming issues of patient adherence is a challenge at each stage of the treatment journey, from early childhood to adulthood. An advisory board of senior endocrine nurses convened to discuss what strategies and tools work well in achieving adherence, and the best practices they identified-including the key strategies of choice, information, teamwork, and support-were presented at the 2016 meeting of The Endocrine Society. The advisers agreed that key steps to improve adherence include: patient/carer-centric endocrine nursing services, good-quality education and support, patient autonomy (where possible), broader treatment choice (in terms of device and self-injection), optimal follow-up from childhood to adulthood, and sharing of best practices.

Item Type: Article
Additional Information: This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs
Subjects: WK Endocrine system. Endocrinology
WS Paediatrics. Child health
WY Nursing
WY Nursing > WY100 Nursing care
Divisions: Womens and Childrens > Paediatrics
Related URLs:
Depositing User: Jamie Edgar
Date Deposited: 09 Nov 2020 12:43
Last Modified: 09 Nov 2020 12:43
URI: http://www.repository.uhblibrary.co.uk/id/eprint/3628

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