"It's not an illness, it's just bad luck": The impact of anaphylaxis on quality of life in adults.

Knibb, Rebecca C, Huissoon, Aarnoud P, Baretto, Richard, Ekbote, Anjali, Onyango-Odera, Shamim, Screti, Cassandra, Newman, Kristina L and Krishna, Mamidipudi T (2019) "It's not an illness, it's just bad luck": The impact of anaphylaxis on quality of life in adults. Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology, 49 (7). pp. 1040-1046. ISSN 1365-2222. This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs.

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Official URL: https://onlinelibrary.wiley.com/doi/abs/10.1111/ce...

Abstract

BACKGROUND

An increasing number of adults are being diagnosed with anaphylaxis, but its impact on health-related quality of life (HRQol) is not known.

OBJECTIVE

The aim of this study was to explore the impact of anaphylaxis on HRQoL of newly diagnosed adults.

METHODS

Interviews were conducted with 13 adults (aged 40-71; five males) with anaphylaxis (meeting WAO diagnostic criteria) to drugs, food, venom or spontaneous anaphylaxis, recruited using purposive sampling from allergy clinics in Birmingham, UK. Data were transcribed verbatim and analysed using thematic analysis.

RESULTS

Four themes were generated from the analysis: the journey from fear to frustration; the need to maintain a healthy identity; control over uncertainty; and the supportive role of others. Participants described their first experiences of anaphylaxis as frightening. Managing the condition was associated with frustration and anxiety, in part due to uncertainty regarding when anaphylaxis might occur. Participants did not consider their allergy as an illness and wanted to retain an identity as a healthy person. They felt a strong need to have control over their anaphylaxis so that it did not take over their lives. The support from others was extremely important, but a lack of understanding of anaphylaxis sometimes hindered that support.

CONCLUSIONS AND CLINICAL RELEVANCE

Anaphylaxis has an adverse impact on the HRQoL of adults irrespective of the cause. More information about anaphylaxis and its management from healthcare professionals may help patients gain a sense of control over their condition and reduce the worry and anxiety associated with it.

Item Type: Article
Additional Information: This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs.
Subjects: QW Microbiology. Immunology
WD Diseases and disorders of systemic, metabolic or environmental origin > WD300 Hypersensitivity. Allergy
Divisions: Clinical Support > Immunology
Related URLs:
Depositing User: Mrs Noomi Tyholdt-Pidgley
Date Deposited: 18 Feb 2021 09:07
Last Modified: 18 Feb 2021 09:07
URI: http://www.repository.uhblibrary.co.uk/id/eprint/3983

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