A Multicenter Study of Patient Acceptability of the IBD Disk Tool and Patient-Reported Disabilities.

Sharma, Neel, Savelkoul, Edo, Disney, Benjamin, Shah, Ashit, De Silva, Shanika, Pattni, Sanjeev, Iacucci, Marietta, Cooney, Rachel and Ghosh, Subrata (2021) A Multicenter Study of Patient Acceptability of the IBD Disk Tool and Patient-Reported Disabilities. Digestive diseases and sciences. ISSN 1573-2568. This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs

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Official URL: http://link.springer.com/journal/10620

Abstract

BACKGROUND

IBD, both Crohn's disease and ulcerative colitis, is associated with significant functional disability. Gastrointestinal symptoms alone are not the sole purpose of the interaction between patients and providers. In order to ascertain patients' disabilities, we utilized the recently developed IBD Disk to help determine their functional concerns and initiate relevant conversation. We aimed to ascertain patient acceptability and their major disabilities.

PATIENTS AND METHODS

In this multicenter study, IBD patients at their outpatient visit were given the paper version of the IBD Disk. Patients were asked to score their level of disability for each item of the IBD Disk. The completed scores were then shared with their healthcare provider to act as a focus of discussion during the consultation. Patients and clinicians were also asked to provide informal qualitative feedback as to the benefits of the IBD Disk and areas for improvement.

RESULTS

A total of 377 (female 60%) patients completed the questionnaires over the study period. Patient acceptability scored on a 0-10 Likert scale was excellent. All patients scored all domains of disability. Sleep, energy, and joint pain were the highest scoring domains of the IBD Disk, scoring higher than digestive symptoms. Clinicians and patients agreed that the IBD Disk allowed for ease of communication about disability symptoms and relevance to their day-to-day functioning.

CONCLUSION

The IBD Disk is a novel easy-to-use tool to assess the functional disability of patients. We next plan to utilize it in the form of an electronic app internationally and in relation to treatment commencement and escalation.

Item Type: Article
Additional Information: This article is available to all UHB staff and students via ASK Discovery tool http://tinyurl.com/z795c8c by using their UHB Athens login IDs
Subjects: QW Microbiology. Immunology
W Public health. Health statistics. Occupational health. Health education
WI Digestive system. Gastroenterology
Divisions: Planned IP Care > Gastroentrology
Related URLs:
Depositing User: Jamie Edgar
Date Deposited: 25 Mar 2021 15:20
Last Modified: 25 Mar 2021 15:20
URI: http://www.repository.uhblibrary.co.uk/id/eprint/4128

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