Protocol for a scoping review exploring the use of patient-reported outcomes in adult social care.

Hughes, Sarah E, Aiyegbusi, Olalekan Lee, Lasserson, Daniel S, Collis, Philip, Cruz Rivera, Samantha, McMullan, Christel, Turner, Grace M, Glasby, Jon and Calvert, Melanie (2021) Protocol for a scoping review exploring the use of patient-reported outcomes in adult social care. BMJ open, 11 (4). e045206. ISSN 2044-6055.

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Patient-reported outcomes (PROs) are measures of a person's own views of their health, functioning and quality of life. They are typically assessed using validated, self-completed questionnaires known as patient-reported outcome measures (PROMs). PROMs are used in healthcare settings to support care planning, clinical decision-making, patient-practitioner communication and quality improvement. PROMs have a potential role in the delivery of social care where people often have multiple and complex long-term health conditions. However, the use of PROMs in this context is currently unclear. The objective of this scoping review is to explore the evidence relating to the use of PROMs in adult social care.


The electronic databases Medline (Ovid), PsychInfo (Ovid), ASSIA (ProQuest), Social Care Online (SCIE), Web of Science and EMBASE (Ovid) were searched on 29 September 2020 to identify eligible studies and other publically available documents published since 2010. A grey literature search and hand searching of citations and reference lists of the included studies will also be undertaken. No restrictions on study design or language of publication will be applied. Screening and data extraction will be completed independently by two reviewers. Quality appraisal of the included documents will use the Critical Appraisal Skills Programme and AACODS (Authority, Accuracy, Coverage, Objectivity, Date, Significance) checklists. A customised data charting table will be used for data extraction, with analysis of qualitative data using the framework method. The review findings will be presented as tables and in a narrative summary.


Ethical review is not required as scoping reviews are a form of secondary data analysis that synthesise data from publically available sources. Review findings will be shared with service users and other relevant stakeholders and disseminated through a peer-reviewed publication and conference presentations. This protocol is registered on the Open Science Framework (

Item Type: Article
Subjects: WB Practice of medicine
Divisions: Clinical Support
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Depositing User: Mrs Caroline Tranter
Date Deposited: 23 Apr 2021 12:15
Last Modified: 23 Apr 2021 12:15

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